In Film Not Going Quietly, Ady Barkan Battles Terminal Illness
While Assuring Healthcare for Others
BOONE, NC – After a video of a confrontation with a U.S. senator went viral, Ady Barkan was
more determined than ever to advocate for healthcare reform—even if it’s the last thing he does.
On Sunday, October 10 at 3:00 p.m., the Appalachian Theatre will host an exclusive free online
screening of the film Not Going Quietly which documents Barkan’s extraordinary story. The film
will be followed by a conversation with filmmakers Nicholas Bruckman and Amanda Roddy who
will discuss their film and the filmmaking process.
At the center of Not Going Quietly are Barkan and his wife Rachael who always said they were
the luckiest people they knew. A rising star in political organizing and new father, Barkan had
his whole life in front of him. But four months after his son Carl is born, Barkan is diagnosed
with amyotrophic lateral sclerosis (ALS), a deadly disease that will ultimately paralyze his entire
body. Despairing at the loss of decades of happiness with his family, Barkan decides to return
to his roots as an activist for the healthcare programs he needs to survive.
Jimmy Kimmel called Not Going Quietly, “A heartbreaking story with humor, insight and action
will resonate with anyone.” As Balkan’s natural voice fades, his influence grows, transforming
him into one of the most powerful activists in America. But as he learns to wield his newfound
power, he must also learn to adapt as a father and husband. As he nears the end of his life, he
seeks to form a lasting bond with Carl, while also creating a better world for him to inherit.
The film has been showcased in prestigious film festivals including Tribeca Film Festival, South
by Southwest, Oxford Film Festival, Minneapolis St. Paul International Film Festival and
Northwest Fest. When film critic Roger Ebert was asked about the film, he said it was “a shot
of pure inspiration…Not Going Quietly has a special power.”
Director Nicholas Bruckman previously produced the feature film Valley of Saints, which won the
Audience Award at the Sundance Film Festival and was nominated for an Independent Spirit
award in 2012. Bruckman’s work has received support from foundations including the Fledgling
Fund, Cinereach, NYSCA, NYFA, and the Alfred P. Sloan Foundation. He is the founder of People’s
Television, an original content company based in New York City and Washington, D.C.
Producer Amanda Roddy is an award-winning documentary filmmaker with People’s Television.
She has led projects as a director, producer, and writer for clients such as the Democratic
National Convention, Covergirl, Elizabeth Warren’s presidential Campaign, Equal Justice Works,
The Nature Conservancy, and The Equity Fund. Her work has been supported by the
International Documentary Association, Rooftop Films, Film Independent, IFP, and HBO.
Not Going Quietly will be presented online and tickets to the screening and includes a
conversation with the filmmakers following the film. Tickets are free and available at
This event is part of the Appalachian Theatre’s BOONE DOCS series and made possible through
the Southern Circuit Tour of Independent Filmmakers, a South Arts program. Since its inception
in 1975, Southern Circuit has brought some of best independent filmmakers and their films from
around the country to communities throughout the South. The program is supported by the
National Endowment for the Arts.
For more information on this event, or to join the theatre’s eblast list, get tickets, or purchase
memberships, please visit the ATHC website at www.apptheatre.org.
About the Appalachian Theatre
The mission of the Appalachian Theatre of the High Country is to revitalize and sustain this historic community
touchstone as a quality home for diverse artists and audiences with a special focus on programs that celebrate our
distinctive Appalachian heritage and enhance our capacity to serve as an economic catalyst for Boone and the High
Country. Once a gorgeous 999-seat Art Deco movie house, the building closed in 2007 and sat empty and gutted
for years. On October 14, 2019, the Appalachian Theatre reopened its doors after a $10 million renovation that
brought the distinctive Art Deco details back to this historic theatre and created a new 629-seat, state-of-the-art,
acoustically fabulous venue for live concerts, films, plays, and dance performances. The historic Appalachian
Theatre has entertained regional audiences in the heart of downtown Boone, North Carolina since 1938.
About South Arts
South Arts advances Southern vitality through the arts. The nonprofit regional arts organization was founded in
1975 to build on the South’s unique heritage and enhance the public value of the arts. South Arts’ work responds
to the arts environment and cultural trends with a regional perspective. South Arts offers an annual portfolio of
activities designed to support the success of artists and arts providers in the South, address the needs of Southern
communities through impactful arts-based programs, and celebrate the excellence, innovation, value and power of
the arts of the South. For more information, visit www.southarts.org.